ALS Ice Bucket Challenge Videos / Education

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First i would like to share 3 videos of the Ice Bucket Challenge.
1) EPIC FAIL ALS - ( My favorite ) xD
2) Male Celebs ALS - 3) Female Celebs ALS -
Ok, so I am sure a lot of you are wondering WTF is up with the Ice water and what if anything does this have to do with ALS ? Right ? well let me explain a bit, The initial 2-3 seconds of Shock your body feels when having ice water dumped on you is the same feeling people with ALS have to feel everyday of there lives... So its Awareness xD

Thanks for reading / watching !
#ice bucket challenge
  • Profile picture of the author Kay King
    Actually - the idea is you donate $10 if you do the "ice bucket challenge" - if you refuse to do the challenge, you donate $100.

    Personally, I think it was a great ALS money making idea (based on the polar plunge for another charity) but it's getting old now....at least to me.
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  • Profile picture of the author hardraysnight
    without wishing to cast cold water on a good idea,hahahahahaha, it is now sooooooooooooooooooooooooooooooooooo boring
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  • Profile picture of the author dave147
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  • Profile picture of the author Alast
    It's turned into a fad, now. My facebook feed is filled with these videos, and most don't understand what they're doing it for - which is evident when they say things such as "AES" instead of "ALS" whilst providing no link to the actual charity page itself (and yes, this actually happened). Sure - this is just one example, but I can assure you there are more.

    Secondly, just how much money is needed for this charity when there are hundreds of other charities that gain very little exposure? I could come up with a list of 10 diseases right now that are just as deserving as the ALS charity, but receive very little funding and publicity, and the chances are, won't ever receive the same exposure as the ALS (I'm not referring to major charities, but smaller ones such as CADASIL syndrome).

    I think the challenge is great to an extent, and mostly done for a good cause, but is being used in the completely wrong way by many people (including celebrities and 'normal' people). It's more about "I'm a good person because I joined the bandwagon to donate to a cause" instead of "I truly want to donate to this charity, and have made the conscious decision to donate without the pressure of a challenge."

    I admittedly haven't donated to this charity because (a) I lack the money to just give away, (b) I'd be doing it simply because of the fad, and (c) any money I donate is insignificant to the amount already raised, and I would much rather donate to another charity because I want to, not because I have to.

    I understand I may be in the minority with my opinion, and well.. nobody even asked for my opinion.. so yeah.
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    • Profile picture of the author discrat
      Originally Posted by Alast View Post

      Secondly, just how much money is needed for this charity when there are hundreds of other charities that gain very little exposure? I could come up with a list of 10 diseases right now that are just as deserving as the ALS charity, but receive very little funding and publicity, and the chances are, won't ever receive the same exposure as the ALS (I'm not referring to major charities, but smaller ones such as CADASIL syndrome).
      Yeah, ALS is one wicked disease. A family friend of mine died a few years ago. She was gone within 18 months after diagnosed. Horrible death

      Out of ALL the diseases known to Man the Diagnosis is about as close to a death sentence as you can get.

      I can think of a few others that are close to it.....Rabies, Pancreatic Cancer, glioblastoma (most malignant brain cancer)..


      I am just curious..... medically speaking do you know exactly how these people with ALS eventually come to their deaths and the steps they have to go down to get to that death ??
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      • Profile picture of the author Alast
        Originally Posted by discrat View Post

        Yeah, ALS is one wicked disease. A family friend of mine died a few years ago. She was gone within 18 months after diagnosed. Horrible death

        Out of ALL the diseases known to Man the Diagnosis is about as close to a death sentence as you can get.

        I can think of a few others that are close to it.....Rabies, Pancreatic Cancer, glioblastoma (most malignant brain cancer)..


        I am just curious..... medically speaking do you know exactly how these people with ALS eventually come to their deaths and the steps they have to go down to get to that death ??
        I'm probably not the one to ask for medical advice, but since you did, I'll go through what I know about it, and then you are more than welcome to Google, if you want.

        Essentially, all the muscles of an ALS victim begin to weaken, to the point of simply not working. Eventually, doing everyday things we take for granted can be challenging, such as talking, walking, and even going to the bathroom. Eventually, the functions of the body (such as breathing) begin to fail, which can lead to death.

        When muscles in the diaphragm and chest wall fail, people lose the ability to breathe without ventilatory support. Most people with ALS die from respiratory failure, usually within 3 to 5 years from the onset of symptoms. However, about 10 percent of those with ALS survive for 10 or more years.

        Amyotrophic Lateral Sclerosis (ALS) Fact Sheet: National Institute of Neurological Disorders and Stroke (NINDS)
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      • Profile picture of the author Kay King
        Lots of info available -

        What is ALS? - The ALS Association
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        • Profile picture of the author discrat
          Thanks Kay

          But it wasn't a question I was asking for myself ( as I already know exactly what happens).

          I just wanted to see if Alast really knew all the horrific details involved with this disease and the Stages these poor souls go through
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          • Profile picture of the author Alast
            Originally Posted by discrat View Post

            Thanks Kay

            But it wasn't a question I was asking for myself ( as I already know exactly what happens).

            I just wanted to see if Alast really knew all the horrific details involved with this disease and the Stages these poor souls go through
            You misunderstood what I was trying to say. Nowhere did I say that ALS wasn't a terrible disease - because it is. I just think the challenge has been changed in a way that people don't care about the disease itself anymore - but for a bit of positive publicity, fooling themselves into thinking they're good people for doing the challenge.

            You need to think about it objectively. There are many diseases which are terrible but aren't getting any form of publicity. Believe it or not, but ALS (although is terrible) is not the only disease on the planet that brutally kills people (to put it bluntly).
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          • Profile picture of the author Kay King
            I just wanted to see if Alast really knew all the horrific details involved with this disease and the Stages these poor souls go through
            I knew that - you want to argue with him because he posted something you didn't agree with. Seems to happen a lot lately.

            ALS is not a common disease - it's classed as "rare". It is a horrible disease - but any disease that is killing you is horrible. Most of all, ALS research has not been under funded.

            This ice bucket challenge is an excellent study in marketing. It appeals to the feel good (donating- though I expect many doing it have given nothing) - but also to the "hey, mom, look at me" that is the narcissist in all of us.

            Why nobody should be upset that the ALS foundation only spends 27% of donations on research – Quartz



            The ice bucket challenge for ALS is the same as the "pink" for breast cancer. It's a hook that works.
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  • Profile picture of the author dave147
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