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Unread 27th Jun 2011, 07:37 PM   #901
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On a side note, I have some domain names that I just put up for sale, but if any of you that have stuck with me for the long run see one they want, PM me and its yours,gratis. Link is in my sig.
Kim

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Unread 27th Jun 2011, 07:51 PM   #902
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Originally Posted by KimW View Post

On a side note, I have some domain names that I just put up for sale, but if any of you that have stuck with me for the long run see one they want, PM me and its yours,gratis. Link is in my sig.
Kim

LOL Kim,

I had to laugh at that first site and what you said on it.

That very same thing happened to me once buying what I thought was a great name.

First thing that happened was something flagged it as adult, can't remember what

I'll try and look thru old posts here because I remember asking if people thought it sounded adult. That was no where near my intention for it.

Just kind of shows different perceptions sometimes..



edit: just found out they didn't bring any of my old posts from the old forum.

Can't say as I blame the powers that be, hell probably a good thing...lol

I did run into an old response from Bev Clement I forgot about... RIP...

I always read her stuff.

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Unread 27th Jun 2011, 08:05 PM   #903
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Hey, I had several LOL moments today on the forum, glad I could pay it forward.

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Unread 28th Jun 2011, 07:20 AM   #904
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OK, my transplant coordinator called and told me that she had heard from the heart Dr and that my file is in the (large) pile of folders to be reviewed by the Drs.
Of course,she told me the problem was not getting back on the list,the problem was getting a donor.
I was happy enough to hear the heart Dr had cleared me that I wasn't going to argue with her!

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Unread 28th Jun 2011, 12:59 PM   #905
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Fantastic news! Now we are back to just ONE problem - well sorta. Donor plus money, guess that is two. The money we can take care of...

KimW still needs our help DONATE DIRECTLY
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Unread 28th Jun 2011, 01:40 PM   #906
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Originally Posted by Diane S View Post

Fantastic news! Now we are back to just ONE problem - well sorta. Donor plus money, guess that is two. The money we can take care of...
Indeed. Even if the Whole amount isnt there yet, having a nice chunk going and steadily and incrementally keeping the funds flowing still gets it.

Og Mandino says this:

"When a strong man takes an ax to the root of a tree.... on the first swipe, even his mightiest blow may not cause a mere tremor in the wood, but with enough repeated blows, even the swipes of a child could bring a mighty oak tumbling down".

Keeping these kinds of things in mind (TRUTHS) is the path to ANY goal...and 50k is a goal that people hit every day!

Now a guy can stand out by a tree and strike it once or twice every hour, or he can non stop deliver blow after blow, ether way the tree will come down with a similar number of swipes, whether that takes a month or whether it takes a day.

That being said, there IS something to be said for momentum. When you have momentum you are swiping hard and digging in with more urgency.
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Unread 28th Jun 2011, 03:12 PM   #907
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keeping you in my prayers.

Internet marketing, content writing,
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Unread 30th Jun 2011, 12:17 PM   #908
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tsk tsk tsk pushed down to page 2 by spammy mammy 'what is your favorite' CRAP.


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Unread 1st Jul 2011, 04:11 PM   #909
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Kim,
Coming out of the woodwork just to say I hope you have a pleasant Holiday weekend -- no fireworks around here due to drought and fire bans
Let us know when they confirm you are back on the list now that you've gotten the okay! Was good to see that

Best~
Andie

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Unread 6th Jul 2011, 02:06 PM   #910
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If you follow this thread, you may be interested in this one too.

http://www.warriorforum.com/off-topi...lk-2011-a.html

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Unread 12th Jul 2011, 06:04 PM   #911
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What the the heck you doing waaay back here Kim..

How goes the good fight?

I would hope you heard back by now...:rolleyes:


Jim

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Unread 12th Jul 2011, 07:11 PM   #912
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JIm, I would hope so too,but no such luck.
But once again I know how to use that phone and I will be calling again this week!
Things seem to have slowed on all fronts lately,hot lazy summer I think,but if I hear anything positive I will be trying to ramp up again.

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Unread 12th Jul 2011, 07:23 PM   #913
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Originally Posted by KimW View Post

JIm, I would hope so too,but no such luck.
But once again I know how to use that phone and I will be calling again this week!
Things seem to have slowed on all fronts lately,hot lazy summer I think,but if I hear anything positive I will be trying to ramp up again.

You know Kim, my first reaction to reading your post was...WHAAAAT?

I can't believe they haven't gotten back to you...so you still don't know if you can get back on the transplant list?

You know (I'm sure at your age) as well as I that a little 'buggin' and keeping your name in their thoughts good or bad, can be a good thing.

Keep calling until they do something just to get you to quit buggin..lol.

There are verifiable examples of this working.

Good luck buddy,

Jim

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Unread 12th Jul 2011, 07:59 PM   #914
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Actually I had my once a month meeting at the dialysis center today and while there the "social worker" as they call her called me in her office to tell me that she had gotten a notice that I had been removed from the active list. I asked her when that notification was from and she said somethihng like June 17. I told her that I have spoken with them since then and I was informed that they were waiting for a dr to review my file to put me back on,and that it should have been done by now.
I told her I would be calling in the next day or so to let her know what I find out.
I'll post here too, don't worry!

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Unread 12th Jul 2011, 08:06 PM   #915
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Originally Posted by KimW View Post

Actually I had my once a month meeting at the dialysis center today and while there the "social worker" as they call her called me in her office to tell me that she had gotten a notice that I had been removed from the active list. I asked her when that notification was from and she said somethihng like June 17. I told her that I have spoken with them since then and I was informed that they were waiting for a dr to review my file to put me back on,and that it should have been done by now.
I told her I would be calling in the next day or so to let her know what I find out.
I'll post here too, don't worry!

I can't believe that something so important comes down to almost 'gossip' ("I heard..."). Of course I don't really know what is going on. It does sound scarily familiar though. No wonder I've grown very apprehensive over the years about the medical profession;. Especially the VA, who I have to deal with.

But yea Kim...be sure and keep all informed. Certainly no one has 'given up' or forgotten.

Best of wishes

Jim

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Unread 12th Jul 2011, 08:08 PM   #916
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Originally Posted by KimW View Post

Actually I had my once a month meeting at the dialysis center today and while there the "social worker" as they call her called me in her office to tell me that she had gotten a notice that I had been removed from the active list. I asked her when that notification was from and she said somethihng like June 17. I told her that I have spoken with them since then and I was informed that they were waiting for a dr to review my file to put me back on,and that it should have been done by now.
I told her I would be calling in the next day or so to let her know what I find out.
I'll post here too, don't worry!
Geez Kim if I had any hair left I'd be pulling it out after that
I've been in a summer slacker mode a lot lately, but I want to look into that Cafe Press and Spreadshirt idea I was talking about in the next couple of days.
Somewhere on my desk I have a few slogan ideas I wrote down.

Life: Nature's way of keeping meat fresh
Getting old ain't for sissy's
As you are I was, as I am you will be
You can't fix stupid, but you can always out smart it.
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Unread 13th Jul 2011, 12:36 AM   #917
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Here's a slogan for ya, Thom -
Stop Political Corruption. Legalize Cannibus.

Jeezes Kim - if it's not bad enough to have to deal with doctors, you have to deal with social workers, too. I can't imagine that one. Nothing else would matter to me at that point because I know I'd have a freakin' stroke.

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Unread 13th Jul 2011, 05:50 AM   #918
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Originally Posted by HeySal View Post

Here's a slogan for ya, Thom -
Stop Political Corruption. Legalize Cannibus.

HA ha ha Sal, Thom is talking about a different kind of slogans.

Jeezes Kim - if it's not bad enough to have to deal with doctors, you have to deal with social workers, too. I can't imagine that one. Nothing else would matter to me at that point because I know I'd have a freakin' stroke.
Sal, they call them social workers but they are really more along the lines of financial aid advisors. They work hard to make sure they use every resource available to make sure their company gets paid.

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Unread 14th Jul 2011, 08:07 PM   #919
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Yes, Kim - you have the patience of Job.

I would be on the phone every 24-48 hours until somebody did something - and as RoadDog says above, I do have tangible examples of people doing what I ask just so I won't call again.

It works real well to be aggressive - professional and polite or at least at the edge - but assertive - Cite how many times you have called, remind them that to you this is literally a life or death matter. Tell them you are very concerned that they have been ignoring you for so long and ask that 'with all due respect' if they can't help you directly (NOW) that you would like the matter escalated to someone who gives a #%!#$%$^$ rats ass.

very professional.


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Unread 15th Jul 2011, 09:35 AM   #920
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Ok, I just got off the phone with the coordinator.
Results? Not much. She said she had reviewed it and recommended I be put back on but others still have to review it.
This time I persued the conversation and told her that was what she told me last time,which was a couple of weeks ago. She explained they were short staffed because of someone being on vacation but my file was in the ones to be reviewed.
I explained that since I had been cleared,and I had already been called once for a kidney then the offer withdrawn, that shows I am near the top of the list and while I still acrue time while I am considered inactive, the reality is I could miss opportunies because they have not put me back on yet.
WHile we were talking she said she had just checked and found my file is in the "fast track" pile now and should be reviewed within a week.
Thats the latest update.

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Unread 15th Jul 2011, 07:39 PM   #921
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Calling Kim Winfrey to the front of the line.
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Unread 15th Jul 2011, 07:43 PM   #922
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Testing,1,2,3

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Unread 17th Jul 2011, 07:35 PM   #923
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Originally Posted by KimW View Post

Ok, I just got off the phone with the coordinator.
Results? Not much. She said she had reviewed it and recommended I be put back on but others still have to review it.
This time I persued the conversation and told her that was what she told me last time,which was a couple of weeks ago.
Keep a phone log, including people's first names, last names, promises made, etc. This will really help, when you can give dates and times and promises made right back to the promise maker. Keep trying to go up a notch in authority as well. Stay polite but firm. Here's a good phrase to repeat ad nauseum "That is not satisfactory." If they start playing the blame game, here's a good phrase "Don't put me in the middle of YOUR management problems."

Good job on that last phone call and hope this week will bring even better news.

KimW still needs our help DONATE DIRECTLY
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Unread 18th Jul 2011, 07:08 PM   #924
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Andie, if you see this, please contact Kim or myself. Thanks!

Sorry for going off topic here.
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Unread 19th Jul 2011, 12:07 AM   #925
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Big Props to Jim for working on the DL Page... How'd that turn out guys?

Darren is in Egypt I believe, on Vacation.
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Unread 19th Jul 2011, 04:55 AM   #926
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Darren gave us a working link before he left. but I don't know if he changed it or got it fixed in WarriorPro or not. So I dont know if we will have a problem still if someone purchases.

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Unread 19th Jul 2011, 06:09 AM   #927
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this is an amazing cause , i wish you the best of luck in finding a kidney
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Unread 19th Jul 2011, 06:15 AM   #928
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Thank you. The search is still on.

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Unread 20th Jul 2011, 08:39 AM   #929
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Had to go to the dialysis center today to pick up some needles.
While I was there I saw they had a pamphlet by the National Kidney FOundation.
Thumbing through it I saw a box titled Kidney Walker All Star Club Members.
Glancing through the list I found my name. Have to admit it was completely unexpected since no one had told me about either the magazine or the article.

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Unread 20th Jul 2011, 09:13 AM   #930
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Originally Posted by KimW View Post

Had to go to the dialysis center today to pick up some needles.
While I was there I saw they had a pamphlet by the National Kidney FOundation.
Thumbing through it I saw a box titled Kidney Walker All Star Club Members.
Glancing through the list I found my name. Have to admit it was completely unexpected since no one had told me about either the magazine or the article.
There you go Kim. Now you can tell them your famous and make them hurry up.

I thought they had to get a release from you to mention you by name?

Hope your still 'bugging' them.

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Unread 20th Jul 2011, 12:30 PM   #931
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Reminder: BUG them - at least once per week?

Do not suffer 'death by inbox'.

I am having some issues myself and you know how tough I sound - well I tried to get 'assertive' with a nurse on the phone yesterday and ended up crying hysterically after the first sentence. So much for the tough guy routine when you are sick, eh?

... and don't think I don't know how tough it is to get attention... The best I got out of the shrew is 'well mam you do whatever you have to do' (threatened to go to emergency)... LOL.

Anybody remember an old song - 'town without pity'?

I hope the link will work from now on - how long will Darren be on vacation?


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Unread 20th Jul 2011, 01:00 PM   #932
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Of course I remember Town without Pity. Its on my IPod along with this song.

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Unread 21st Jul 2011, 01:02 PM   #933
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Raised: $4,366

Wakeup Folks..........there should be a zero on this number by now!


Warriors don't just 'quit'.......(although we take minor side trips at times)

I dare you all to double-check your sig links and make sure there is one for the funding so you keep the word spreading!

:-)
Andie ........Gawd, it's Sizzlin' down here in Tx...

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Unread 25th Jul 2011, 12:45 PM   #934
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I think its sizzlin almost everywhere Andie! I don;t know how I missed this post,but your right,we don't quit.
National Kidney Foundation: Uniform Organ Donor Card

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Unread 30th Jul 2011, 09:53 PM   #935
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So.....what is the latest news on this Kim?
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Unread 31st Jul 2011, 05:04 AM   #936
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Re: I am asking for help.
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Floyd,
a few days ago my transplant coordinator called my wife and told her my file was in order and all she needed was the results of the stress test I did at the hospital a few weeks ago,and that she would get those results faxed to her. Supposedly after she gets them I will be back on the list. I intend to call her this week.

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Unread 31st Jul 2011, 10:32 AM   #937
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Re: I am asking for help.
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Is the WSO still making sales? And how are you doing Kim? The last donation on your page was a month ago. Hmm.. We need to think of something to get people to start donating again. Outside of WF this time maybe.

Sumit.

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Unread 3rd Aug 2011, 10:36 AM   #938
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Hi Kim, how are you? Are you back on the list? Hope your answers are "Good" and "Yes."

KimW still needs our help DONATE DIRECTLY
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Unread 3rd Aug 2011, 12:51 PM   #939
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Diane,
The quick ansers are I'm doing so-so and No.
I just got back from spending the better part of the day at the vascular surgeons office. I've been having problems with ny dialysis access spot aka my fistula. they did an angioplasty on it today so hopefully that will make it work better.
As far as they transplant list, I have not been told I am back on it yet. Its honestly beginning to tick me off. I guess the transplant unit is going to make me wait the 3-6 months after all,even thought the heart doctor cleared me to get back on after 30 days.

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Unread 3rd Aug 2011, 08:24 PM   #940
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Re: I am asking for help.
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Originally Posted by KimW View Post

Diane,
The quick ansers are I'm doing so-so and No.
I just got back from spending the better part of the day at the vascular surgeons office. I've been having problems with ny dialysis access spot aka my fistula. they did an angioplasty on it today so hopefully that will make it work better.
As far as they transplant list, I have not been told I am back on it yet. Its honestly beginning to tick me off. I guess the transplant unit is going to make me wait the 3-6 months after all,even thought the heart doctor cleared me to get back on after 30 days.
Kim, you should be ticked off!! ~for me~ Call the coord. first thing in the morning again. It is friday and better than have it in a Mon. morning pile of notes. Find out what *exactly* has happened to your file since it was in the "rush'' pile on your last call (if I remember right)...heck, tell them you have had 'possible' donors requesting status before they get checked.
So, I'll chk and see what they say tomorrow.

Now, hope you are having a good eve.

Andie

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Unread 4th Aug 2011, 05:19 AM   #941
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ANdie, While I hope not, it looks like today may be one of those going back to the hospital days. The procedure didn't work yesterday so I am now on day 3 of no dialysis. Apparently the concensus is they since my fistula isn't working, they want to put a "central line" in again. This is aka a catheter that goes into my chest .This would mean another hospital stay ,another operation where they put me under and most of all going back and doing the dialysis in center till they figure out what is wrong with the access.None of the options are very appealing.( I'm pretty sure there is a picture on maskidney that shows the first catheter they put in my chect.)
While I can't change my transplant center because the insurance will only pay for the workup once, I can change my kidney dr,and hopefully dialysis center,and I am about to start xweriously looking for other options in that area.
I'll post something when we get back from our medical travels today,but if I don't post anything it means they did put me in the hospital for a few days.
Wish me luck!
Kim

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Unread 4th Aug 2011, 07:02 PM   #942
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Good news is that I didn't have to go to hospital so far! My arm is totally black and blue and swollen though,and it hurts like no get out.Am hoping the next few days brings healing so I can stay out .

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Unread 4th Aug 2011, 07:16 PM   #943
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Re: I am asking for help.
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Good news Kim! Glad you didn't have to go to the hospital again.

Will keep fingers and toes (legs too...) crossed that you can remain at home, no matter what the circumstances are.

Please keep us posted.

Let us know what (if anything), we can do for you.

I know, we need to focus on the "Allstar" package again.
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Unread 4th Aug 2011, 07:30 PM   #944
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Re: I am asking for help.
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Sorry to hear you are going through another rough patch, Kim. You are always in my prayers.

I know some place in my head why 'bad things happen to good people' - and I am sure part of it is so that the rest of us can say, 'well, I haven't got it so bad', or 'there but for the Grace of God go I' - so we can remember how blessed we are to have our health.

Thinking of you a lot as I am having kidney stone issues again. It has been hell fighting with the snotty stupid 'gate keepers' - I have had a ton of tests and appointments and had to fight my way in and out of each place while being in pain - and scared.

The actual medical people are fine but getting to them is another story - ('oh you are peeing blood, we can see you in a week) - and getting out of there is almost as bad (waiting for results -- forgotten in the ER for 3 hours - AGAIN - just so somebody can say 'ok to go'). This has been almost as bad as the pain and for the first time in my life I have high blood pressure now - spiking up and down but never normal and I am quite sure it is not just fear but being ticked off.

... and again I just have to think of what you are going through and then I feel silly for being such a drama queen...

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Unread 4th Aug 2011, 07:42 PM   #945
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No matter what our medical problem may be, just seems everyone is being put on the "back burner".

Getting old, or sick, sucks big time.
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Unread 4th Aug 2011, 07:48 PM   #946
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Jeezes Kim - why isn't your doctor leaning on these people? Considering the bucks he's getting already - he should be in there literally screaming at these people to get their excrement coagulated. Perhaps you SHOULD talk to another doctor and see if he says he can put a stop to the nonsense - then tell the Doctor who is familiar with your case that if he can't do it someone else is willing to. You might have to start hitting that Doctor's wallet to get him to pick up his sword.

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Unread 4th Aug 2011, 07:50 PM   #947
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Re: I am asking for help.
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Originally Posted by waterotter View Post

No matter what our medical problem may be, just seems everyone is being put on the "back burner".

Getting old, or sick, sucks big time.
We've been on the back burner for hella ages, Jody. If we aren't profit - we don't matter. Religion is for the poor.

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Unread 5th Aug 2011, 10:35 PM   #948
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OK - Mother Hens Alert! We didn't hear from Kim today.

Did he have to go to the hospital after all???

I sure hope not.

Kim - come in Kim - Chime in anytime now!

10/4 good buddy?

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Unread 6th Aug 2011, 03:15 AM   #949
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Cash-for-kidneys tuition plan stirs ethics debate - HealthPop - CBS News

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Unread 6th Aug 2011, 11:45 AM   #950
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Hey Pat,
I am thinking he probably has.......sent him a PM yesterday w/no answer and no FB updates since thurs.
saying more prayers for him that it is nothing seriously bad

Andie

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