So many of my long time OT friends shared this journey with me.

by KimW
20 replies
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Today is a very special day for me today
3 years ago today pretty darn close to the time it is now as I am posting this, I received the gift of life. And freedom.
I received my kidney transplant.
Without going into the story that many of my friends have heard over and over,in December 2006 I was diagnosed with Renal (kidney) failure. Within 6 months of the diagnosis I was on dialysis. At first it was 3 times a week in a center then I because one of the first in my area to do Home hemo dialysis ,which became 6 days a week. Daily was more constricting as far as lifestyle went but quality of life was much improved over in center treatment.
On January 11th 2012 I received a phone call from my transplant unit. I had to go get blood work done monthly so I assumed it was the regular call to schedule that.
I was wrong.This caller started telling me there was a potential match for me for a transplant and asked me if I was interested. Damn right I was. Bottom line was that after about a 20 minute phone calls I was headed down to get my transplant I had waited for since 2006.
The rest of the day was a flash and a blurred memory,but I awoke in the bed with a lot of equipment attached to my body. And a new piece attached inside my body. I now had 3 kidneys.When you get a transplant they just stick that new one in, they don't remove anything.
I took less than a week before my new kidney was functioning enough to have all the equipment removed from me, but for 3 years now it has functioned well enough to keep my relatively healthy.
I traded being attached to a machine 6 days a week to taking more pills in one day than most people take in a year but it is a trade off I gladly did. ( Except for the ungodly expenses of the anti-rejection pills). This is what I meant by also regaining my freedom.
Tomorrow is my 3 year checkup at which point the government considers the operation a success. I might lose many of the "benefits" I currently have.
But for me, getting up every morning means the operation was a success.
Breathing fresh air and being able to see my children and grandchildren means the operation was a success.
So today is a very special day to me.
I never suffered any major health issues before I was suddenly and unexpectedly diagnosed with kidney failure. One never knows when their life might change in a flash.
Make every day from today on forward a special day for you. And everyone who your life touches from today on forward.
God bless you all.
Even my atheist friends.
  • Profile picture of the author discrat
    Awesome, Kim !

    Keep it up and your Story is quite an Inspiration to us all
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    • Profile picture of the author AprilCT
      Kim, that is wonderful that you got one. I truly hope and pray that it will always function properly for you. I worry about my niece, although she doesn't seem to be having problems, she only has one functioning and the other is shriveled up.
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  • Profile picture of the author KimW
    April,

    I would not worry too much for her. A person can live a normal healthy life with only one functioning kidney.

    That's why someone can be a living donor and give one away and still have one that is capable to be all they need for the rest of their life.

    At this time science seems to be only a few years away from offering a fully functioning artificial kidney that may even have benefits the real organ transplant doesn't.

    I am willing to talk to anyone that either has renal problems or knows someone ,family or friend, that has problems. During the course of the past years I am somewhat of an expert in this area.
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    • Profile picture of the author Kay King
      Kim - Doesn't seem like it's been that long.

      We're glad you're still around and I know your family is, too. My hope is not too far in the future medicine will be able to GROW a kidney from your DNA or stem cells or whatever...so the rejection issue will be irrelevant.

      kay
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      • Profile picture of the author KimW
        Originally Posted by Kay King View Post

        Kim - Doesn't seem like it's been that long.

        We're glad you're still around and I know your family is, too. My hope is not too far in the future medicine will be able to GROW a kidney from your DNA or stem cells or whatever...so the rejection issue will be irrelevant.

        kay

        Kay,
        That is why I said this:

        "At this time science seems to be only a few years away from offering a fully functioning artificial kidney that may even have benefits the real organ transplant doesn't."

        I was reading about an artificial kidney that they hope to start testing in the next few years that they claim beats the problem of the body rejecting it.

        There is a very real possibility that if ,God forbid, this kidney did fail myself and others will no longer have to play the 5+ year average waiting game for a transplant.
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  • Profile picture of the author sbucciarel
    Banned
    That's amazing and I'm so happy that you've made it to the 3 year mark
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    • Profile picture of the author Cali16
      Kim, so glad to hear that you are doing well and have reached the 3-year mark!

      Your post is such a great reminder to not take anything for granted in life, and to live each day fully. Thank youfor that.
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  • Profile picture of the author waterotter
    Hallelujah, Kim!

    I received your email today, but haven't responded yet. I was going to ask you about your kidney and low and behold, I pop in here for a break and this is the first thread I see. What a great post - awesome news!

    Wishing you the all the best tomorrow with your check-up!

    Jody
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  • Profile picture of the author Dennis Gaskill
    Happy Three Year Anniversary, Kim! Like Kay said, it doesn't seem like it's been that long. Good to see you again. I don't post much anymore, but I had to chime in here.
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  • Profile picture of the author WD Mino
    Hey Everyone! Hey D nice to see you man .

    Well Kim! God is good. I am so very thankful to have been a part of your life. You faced it head on and it was terribly tough. I appreciate you and thanks for letting us know what's up.
    I love ya man and am so glad things have finally worked out for you.
    God bless you and your family.
    -Will
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  • Profile picture of the author jacktackett
    Congrats Kim, and here's to many more fun years for you with your family!
    Best,
    Jack
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    • Profile picture of the author Richard Van
      Well done Kim, good for you. It's been a long tough road but it's helped make you what you are today. I'm very, very pleased for you.
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  • Profile picture of the author HeySal
    Wow - 3 years. It seems like just a few months back. Holy cow. It's great to know you're now a success story. I was worried about ya for awhile.

    Good job - keep it rolling.

    Now that the kidney problems are past whadya say we figure out something for old age? I seem to be coming down with a terminal case of it.
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  • Profile picture of the author nidhish
    Congrats kim !
    keep it up dear friend .
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  • Profile picture of the author Rod Cortez
    Awesome story Kim. Happy New Year to you, may you have many, many more!

    RoD
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  • Profile picture of the author Sumit Menon
    Yo! Great going Kim! I remember how excited everyone was when you got the kidney. But a lot of those guys arent around anymore.
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    • Profile picture of the author Karen Blundell
      Kim, it's wonderful that you are healthy and happy - 3 years went by very fast- congrats!
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  • Profile picture of the author laurencewins
    Congrats Kim. I am so happy for you. I know what it is like as I have a good friend who has been on centre dialysis for 9 years. He is 79 so he isn't eligible for a transplant and I see what he goes through with the 3 times a week routine.

    I have medical issues of my own but, for the most part, the pale into insignificance compared to that.

    I appreciate you sharing your story of courage and hope because it helps us all draw strength.
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  • Profile picture of the author seasoned
    I am always just at a loss in such cases. I just never know what to say. I have seen the type of gadget you likely used, and spoken with people on both ends of the system. I didn't even like the catheters they stuck up my arm to put in die for the CAT scans, and I didn't like the feel of that die. I know that was a SMALL example that is a mere ghost of what you must have gone through. And I don't like the knowledge that I must take a daily drug just to keep what function I have. Just a small example of your former need to be on dialysis.

    And I luckily never had to worry about epogen. I recently, in an interview tried to explain how incredibly expensive it was. I said it must have cost like 13-14 cents per unit when I was there. I explained that that doesn't SOUND like much, but when you figure so many need 30-50 THOUSAND units, it ads up, they got a kick out of that.

    Well I hope I NEVER have to deal with that, and I am happy that you have gone so long without having to deal with it.

    I guess you can be happy that they had such machines and all. Imagine how they must have been 30 years ago. You may not have even had the option for home care. And you may not have had any time to yourself.

    Steve
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